September 11, 2014 mcfadyena

New Diagnosis in Ontario

IMG_20140911_133205This beautiful little boy, Ayub (almost 3 years-old) was just diagnosed with MPS IVA (Morquio A Syndrome) today in Ontario. There is #HOPE for him because the treatment he needs has been approved by Health Canada. The only thing preventing him from beginning treatment ASAP is, once again, the issue of Provincial Reimbursement by the Ontario government.

We will be working hard to help Ontario gather the information needed so they can make the right decision for Ayub and his family, and we will do whatever we can to ensure that treatment begins ASAP!

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We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Morquio A Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!