Vimizim Approved

HEALTH CANADA APPROVES VIMIZIM TO TREAT RARE DISEASE

First Ever Treatment For Morquio A Syndrome; Advocacy Group Calls For Expedited Access For Patients Throughout Canada

CANADA (July 7, 2014) – Health Canada has announced approval of Vimizim, a new enzyme replacement therapy (ERT) to treat Morquio A syndrome, a rare, devastating, and progressive disease that affects 70-100 people in Canada. Vimizim is manufactured by Biomarin Pharmaceuticals (BMRN) and is the first ever treatment available for this rare disorder.

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Drawing Hope – Morquio A

What a great project!

Luke and Zane Braun, two boys from Ontario battling Morquio A Syndrome, were featured by photographer Shawn Van Daele for his DRAWING HOPE PROJECT.

Luke and Zane were asked to complete a drawing showing what life would be like for them after receiving ERT treatment with VIMIZIM.  Shawn then takes that drawing, does a photo shoot with the boys, and hits his home studio to edit his subjects into their “dream”.  The results are stunning!  See the images below and visit Shawn’s page over at www.drawinghope.ca.

Luke, Zane, and Shawn’s journey with the DRAWING HOPE PROJECT was featured on CTV news as well!

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CONTACT US AND SHARE YOUR STORY!

We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Morquio A Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!